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Palliative Care Service
Introduction
The Palliative Care Service has programs for 1) inpatient care, 2) outpatient
clinic and home care, 3)consultation, 4) research works, 5) volunteers,
and 6) education and training. The goal of these six programs is to provide
the highest possible quality of life for patients and their family members.
Palliative care affirms patientis view of life and regards dying as a
normal process. Also it emphasizes relief of pain and other distressing
symptoms. It integrates, therefore, the physical, psychological, social
and spiritual aspects of patient care, and offers a support system to
help the patient live as actively as possible until his or her death and
the family cope with stress during the period of patientis illness and
the bereavement.
Routine Activities@
The Palliative Care Service of the National Cancer Center Hospital East
(NCCHE) comprises followingthree divisions, the palliative care unit (PCU)
for inpatients (25 beds), the clinic for outpatients and the telephone
consultation service. Many patients have visited the clinic up to the
present, and the demand for clinical services has been increasing rapidly
in these days.
1. Inpatient cares
A total of 333 patients (189 males, 144 females) have been admitted at
the PCU from January toDecember 2001. Lung cancer was the first rank primary
illness (112 patients: 33%), followed by head and neck(40 patients: 12%),
gastric (23 patients: 7%), pancreas cancers (20 patients: 6%), colorectal
cancers (21 patients:6%), breast (25 patients: 7%), and prostate cancers
(6 patients: 0.2%). The most common reason for patientsi admission was
pain (66%), and the other reasons were fatigue (49%), loss of appetite
(32%), dyspnea (39%),nausea and vomiting (20%). In 2001, we have increase
of 45 patients in total compared with the number of patients treated in
2000 (see Table).
2. Outpatient Clinic
A patient who wishes to receive palliative care at our facility must be
registered at the outpatient clinic,after the confirmation of informed
consent that he or she was given p by answering the specific application
form. In 2001, we had registration of 491 patients (317 males, 174females)
at the outpatient clinic. Of the 491 patients, 395 (80%) were referred
from the other clinics in NCCHE,39(8%) from the National Cancer Center
Hospital, Tokyo, and 57 (11%) from the other medical institutions. Of
the 491 patients, 217 (44%) had been previously treated with surgery,
297 (60%) with chemotherapy, 35 (7%)with hormonal therapy, and 217 (44%)
with radiotherapy. After the first consultation of 491 patients, 338 (69%)had
been registered on the outpatient-list of PCU, and 153 (31%) were put
on the waiting list for admission. The primary illnesses of these patients
are shown in Table. Most of them were in far advanced stage, with 7% in
Stage III, 78% in Stage IV of which one third were with recurrent disease,
and the rest 15% was unclear.
3. Telephone Consultation Service
This service has proved very effective to support patients at home. A
specialist nurse regularly calls.articular patients for obtaining the
information on the patientsi conditions and for providing adequate advices
to families on Monday or Wednesday. In 2001, 126 patients (67 males, 59
females) used the service for 5 to 30 minutes once or twice a week. Consultation
is referring to the patientis condition, symptoms, anxiety, and the other
problems of daily life. The service is also used to make an appointment
with a doctor when necessary, to decide appropriate timing of hospitalization,
and to give psychological support to those who take care of the patient.
New Developments
In 2001, we completed a clinical research for assessing the efficacy of
Support Team Assessment Schedule(STAS) in Japanese version, which we had
drawn up two years ago for quickly assessing the qualities and activities
of clinical practice in palliative care. The STAS, which had been originally
developed in UK in community settings, is now widely used in both inpatient
and community settings in many countries. Measurescales, which we developed,
are now confirmed of their validity and adaptability for using as outcome
measures.
In this study, inter-rater reliability was assessed by determining the
proportion of individuals on the clinical team who had same rating and
by Sperman rank correlations between individuals on the team. For each
clinical case, the proportion of individuals on the same team who had
the same total score was not greater than 20%. The majority of the proportions
were in the range of 0.77-0.93. The result proved inter-rater reliability
to be satisfactory.
Y. SHIMA
Number of Patients Treated at PCU in 1999-2001
| |
1999
|
2000
|
2001
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| Hospitalized |
337
|
288
|
333
|
| Discharged |
333
|
285
|
325
|
| @ |
Dead |
258
|
238
|
263
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| @ |
Alive |
75
|
47
|
62
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@
Diagnosis of Enrolled Patients at PCU in 2001 (n=491)
| Diagnosis |
No of pts
|
%
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| Lung cancer |
196
|
40
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| Head & Neck cancer |
63
|
14
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| Gastric cancer |
37
|
8
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| Colorectal cancer |
36
|
7
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| Pancreas cancer |
32
|
7
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| Breast cancer |
31
|
6
|
| Others |
96
|
18
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Table
of Contents
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